This conference is for both families and professionals who care and work with individuals with Fragile X Syndrome, Down Syndrome and autism spectrum disorders. It is an opportunity to learn about important aspects of neurodevelopmental disorders and the latest research findings, as well as giving families and professionals time to meet and share their experiences with each other.

We are delighted to welcome back leading international experts in the field of neurodevelopmental disorders, “Tracy and Mouse” from Denver, Colorado. They are the co-founders of Developmental FX,a not-for-profit organization specializing in clinical services for families with Fragile X Syndrome and neurodevelopmental disorders.

Tracy Murnan Stackhouse, MA, OTR, is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. She has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, fragile X and related topics.

Sarah Scharfenaker, MA, CCC-SLP, fondly known as “Mouse”,  has worked in the fields of Fragile X Syndrome and neurodevelopmental disorders over two decades. Mouse has published many chapters and articles on intervention for Fragile X. Her special connection with children and adults as well as her extensive expertise allow her to bring a depth to her work that is unmatched and well remembered by those who have seen her.


8:15-8.30        Registration

8:30-8:45        IFXS Welcome & Introductions

8:45-9:00        What is Fragile X?

9:00-10:30      Setting the groundwork: Understanding the Fragile X learning style; motor planning & imitation in Fragile X; the basics of hyperarousal

10:30-10:45    Break

10:45-12:15    Hands-on hyperarousal experience
Calming, coping, comforting for hyperarousal and sensory based strategies for self-regulation

12:15-1:00      Lunch

1:00-2:45        Routines and language strategies

2:45-3:00        Break

3:00-4:00        FX MAX: A tool that pulls it all together

4:00-4:30        Adults in action

4:30-5:00        Questions and Answers